Saturday 20 September 2014

32. Could You Hold This Box Of Hopes & Dreams While I Go To Work, Please?

I’ve promised myself that I’m going to be more positive in this blog. It’s not good to keep ranting and raving and going on because I’m miserable. I’m going to focus on the positives in life and I’m going to use Tony Robbins to do it! Only because I can get free videos on YouTube and his talks usually last as long as my journey home. Bonus. See how positive I am?!

I was reading an interview with Executive Producer and Writer, Bob Lowry. He stated that he had been in therapy a lot over the years and that one therapist once said to him ‘Most people don’t wake up until they know they’re going to die.’ Ok, so this isn’t taking the cheery turn I had hoped for but I’m going to try hard to save this blog. Bear with me. Well what Tony says is similar to that way of thinking but he applies a little more to it. He states that not taking the opportunity to make the right choices for you can lead to depression and people wanting to end it all, because they’re miserable.

I think both of these statements are true. In one statement the results of impending doom can lead to a more positive outlook. In the other, positive changes early on can help to avoid a negative outcome. I expect most of us sleepwalk through life. I know I do and I put that down to the fact I wasn’t medicated for bipolar until 2 years ago. I have achieved a lot in those 2 years now that I have some clarity in my head but I know that I could have achieved more if things had gone differently. For others illness isn’t a factor but normal, everyday things can be. How many of you are putting off living your dreams while you raise your children, which could potentially take 20 years away from you while you wait. How many of us go to work every day and dream of being something else? Have you signed up to a course so you can start that degree or is money holding you back? Let’s face it, none of us ever have enough time or money and we use these obstacles as a reason for not moving forward with our dreams and desires.

Since I started this blog I’ve been reliving my dreams from my teen years of becoming a professional writer. The fact that I don’t know where to start, how to approach newspapers, can’t finish a novel to save my life, struggle with storylines in scripts and have major problems with tenses (you’ve probably noticed) isn’t going to stop me! I have a plan. I’m going to research tense and really try hard to perfect that as it affects every aspect of my writing. Then I’m going to send any articles and blog links to various appropriate papers, magazines and forums for review. It’s not a glamorous start but it’s a realistic one. And on top of it all it gives me a goal to work towards and a positive outlook on my future, which has helped with my depression a little.

https://www.facebook.com/myfamilyandjanice?ref=hl#!/AForayIntoPsychology/photos/a.252429588193012.38575.178422632260375/436848546417781/?type=1&theater

As Tony says, the key to starting to resolve issues in your life and feeling as if you’re taking some control is to take a problem and keep it realistic. We are all capable of dramatizing and catastrophising which blows our problems out of all proportions. An example of this, say you’re overweight. You may feel there’s nothing you can do about this. You justify that by saying ‘I’m big boned.’ Think about this reasoning for remaining unhappy with your weight. You’ve basically said there is nothing you can do about your situation. You can’t change your bone structure, size or weight, so you’re NEVER going to be happy about it. A better way of looking at your situation is to be realistic. You eat badly, but you don’t’ know how to change that. That’s understandable. I had no education in nutrition and a bad upbringing which left me with anxiety about hoarding food and overeating. I know changing these aspects of your life is not easy. But making a doctor’s appointment is easy. Speaking to the doctor and admitting that you just don’t know what to do to change this and would like some dietary advice is a small step in the right direction, and suddenly you’ve taken some control. This is a basic example but it does show how we over-think things and put obstacles in our own way at times.

Please let me know your thoughts.

Saturday 13 September 2014

31. Desperately Seeking Normal

So you’ll be pleased to hear that I had my psychiatrist’s appointment this week. It went as well as it usually does. I met my new doctor. They change every 6 months because they get moved from one trust to another, I guess it’s done so that they pick up as much experience as they can get. I’m sure this is good for the doctors but I’m not so sure it’s always good for the patients. Personally I feel like I never know what I’m going to get when they change. Some are nice, some can’t make a decision to save their life (or mine) and some are just plain dismissive.

I went in to my appointment wearing jeans and a smart top plus my usual make up and jewellery which was my first mistake. I look far too stable when I do that. The key to getting good NHS care is to act as nutty as you feel. Some of the people I met (and had to step over) in the waiting room had this down to a fine art. They shook, they shouted, they drank red bull after red bull to get their energy levels to peak performance. One guy read my ‘Wellbeing’ magazine over my shoulder, which was fine, personal bubble not excluding, until he started to dribble. Luckily I’m relatively fit because I found the only way to get away from him was to straddle the coffee table and edge myself down the room.

When Dr G called my name he seemed genuinely ok. I shook his hand and he offered me a seat. Polite, friendly smile, this is all going well so far, I think. He started our meeting by asking me how I’ve been. I told him about my new job, how I’d experienced a hypo-manic episode during the first six weeks and how I was now feeling quite depressed most days and was thinking about taking a handful of pills next Friday (to be specific). He wrote these things down as if he was writing a shopping list. Carrots, chicken nuggets, suicidal tendencies.

Then he used the word that no person who DOESN’T have to live with bipolar should EVER be allowed to use on someone who is afflicted with it. He told me that ‘This is all quite NORMAL for bipolar.’ Normal. NOR-MAL. What the f**k does he know about normal and bipolar?! How can that word even apply to the life I lead? NORMAL!!!!! *Starts shrieking at the laptop as she types furiously*

*Deep breaths.*

*Licks an M&M all over like a long desired lover.*

And calm.

Then he asks me if I’ve heard any voices or seen anything strange.
‘Yes, I say,’ thinking back to the last time I heard from Janice. ‘In February.’
‘No,’ he snaps. ‘I mean in the last week.’
Oh I’m sorry. I didn’t realise that when it comes to hearing voices in your head there is a time when it really does become passé for everyone else around you to keep hearing about it! Next time I’ll keep my delusional behaviour current or I’ll keep it to myself.

It’s at this point that I dare to ask whether there is anything the NHS can do to help me through this difficult time. Do they, for example, provide some sort of counselling service for people who are feeling so low they wonder how much vodka they will need to drink before their liver finally gives out? He looks me in the eye and states that the NHS doesn’t offer anything as basic as counselling. The best he could offer was CBT (cognitive behavioural therapy) but why don’t we wait until I have my next blood test for lithium levels? I think this must have been the point at which I snapped because I just remember there being a lot of snot and tears from then on. I’m not quite sure how a blood test will help him decide that I’m actually sick enough to warrant some attention here but his next suggestion just floors me.

He states that I seem to get worse when I’m feeling lonely so the other option he can suggest is that he hospitalises me. But he then tells me that I’ll only be even lonelier in a hospital. As if this is supposed to make me feel cared for in some way.

As I try desperately to calm down through the sobs I notice that my right eye has begun to twitch. The way a serial killer’s might.

So my options are, do nothing, let nature and my paring knife find their own way or go into hospital and be strapped to a bed where I’ll suffer endless loneliness and never be allowed out because my condition only ever seems to deteriorate. Brilliant. Psychiatry at its best.

Anyway, I just had to get all that off my chest. Please feel free to let me know your experiences, NHS based or otherwise. Personally I’m starting to understand why so many turn to drink and drugs.

Saturday 6 September 2014

30. Pretending To Be Me

More and more lately I’ve been feeling the effects of depression in between the moments of feeling nothing at all. I’m acting a little bit like a pregnant woman right now. I can go from nought to snot inducing crying phase in sixty seconds. And in those moments that’s when the world turns into a dark place. All my fears come rising to the surface, all my pain comes to call and my mind throws things at me which make me feel entirely worthless.

It’s at times like these that I wonder whether I can keep going with all this bipolar nonsense. It’s not as if having an understanding of this condition makes it any easier to live with. It’s not as if talking provides a cure. I’ve come to the realisation lately that there has never been a true moment of clarity in my entire life where I’ve known that the decisions I’m making are mine and mine alone and that I’ll stick with them. I’ve never been happy because from one week to the next something inside me keeps changing the rules. It’s like playing a game that you’re never going to win. And not a cool game like Super Mario or, during the speedier times, Sonic. No, it’s like playing Monopoly over and over again. Or as my husband calls it, Monotony. There is no winning. There’s just hard choices and times when you’re functional and have money and property then times when you can’t function and find you’ve lost everything. But just like the pieces on that board, you’re pretty much alone the whole time.

And the loneliness. Oh how I love that feeling. Not being able to connect to others because you can’t even bring yourself to like what you are. Well thanks for that one, Universe! And what’s the alternative? A ten minute session once every 3-6 months with a trainee psychiatrist, carrying on as best you can, pretending that you are the person you present to everyone, or giving in to it and becoming the insane, vibrating, paranoid, debilitated by OCD fruitcake who needs around the clock care that you know lives just a centimetre or so beneath your skin. There have been so many times in my life when I’ve thought about giving in to that but I’m not sure that giving up would be any better. It seems to me it would take less work to give up than to keep going and from what I understand there are drugs like Diazepam on tap in hospital, which is an incentive, but I’m not sure there’s any coming back from that state. No coming back and no way out.

So I live the lie. The one in which I work to the best of my ability, the one in which I embrace my fate, take my pills every day, wonder quietly about whether I will ever actually make a decision I can live with forever and tell people that I wish there was a cure for bipolar. But even that’s a lie. I don’t wish there was a cure. I wish there was a way to balance the chemicals in my brain so that I was always productive, creative, full of energy and able to do everything in life with ease. I want to be in a permanent state of hypo-mania. Sometimes I wonder whether my constant desire to have the things I can’t reach is born of those times when I’m in a hypo-manic state.

I’m reminded of Tennyson’s poem, ‘In Memoriam A.H.H.’ in which he states ‘Tis better to have loved and lost than never to have loved at all’. And in contrast, Hunter S. Thompson’s quote ‘You can’t miss what you never had.’ That is my life all over, it seems. The polarity of these two statements mirrors the polarity of my entire existence.

Let me explain.

Tis better to have loved and lost. Tis better to have experienced a period of hypomanic behaviour during which you were productive, creative, happy, wild and carefree than never to have experienced one at all. Then, when you lose that feeling, despite feeling as if your wings have been clipped and the ensuing depression which takes over and the reminder that you once had a hell of a lot more control over your life, this is still a better state to be in, than to NEVER have experienced this state.

You can’t miss what you never had. You never experience hypo-mania, you never know that there is any other way of feeling than the normal range of emotions you go through. Your life is generally calm and collected with no dire need for excitement, no possibility of hallucinations and no desire to leave your life as it is and start a new one in a commune in LA.

So you can see which statement I feel more of an affinity with. Because let’s face it, it really IS worse to have experienced something amazing and then have it taken away from you, despite the fact that state also comes with hallucinations and other such novelties.

So will I ever be happy? Will I ever be content with my lot in life? It would appear this is something I should put to the latest trainee psychiatrist and see what they think. I’m sure they’ll have the answer I seek!

Saturday 30 August 2014

29. Would You Like Salt With Your Salt?

Today I’m feeling vaguely victorious and vaguely petrified in equal measure. I told you about my diet, right? The one 0where I have to cut out everything but air, acorns and, if I’ve been really good, I might get to sniff the fridge? Well, when I said that diet and exercise wasn’t good for you, I wasn’t kidding. It turns out that the type of diet I’m on is low in salt as well as low sugar, low fat and low flavour.

Now, I started on lithium 2 years ago. I read the little pamphlet that came with it stating what to do with the little white tablets, when to take them, how many to take and what to do if I accidentally start snorting them like cocaine. But after that I kind of forgot about the little pamphlet and got on with my life. So when I started this diet it didn’t occur to me that the odd symptoms I started getting about 2 weeks in were anything more than dietary pains or the effects of a lifetime of living on sugar.

Last week my lips went numb. Just once and just for about ten minutes and I didn’t really think much of it other than ‘that’s odd and I hope that doesn’t happen again’. But it did happen again. And I was tired all the time. Exhausted to my core kind of tired. And then my right hand went numb which, to my dismay, didn’t stop me being able to go to work and type (I mean, what is the POINT of being poisoned slowly if you can’t get a day off out of it?). And my concentration has been awful. All these things I’ve put down to other issues but it turns out that a low salt diet can really affect your lithium levels, raising them to the point where they become toxic. Yet again I ask you, if you suddenly turned radioactive, you’d want a day off work, right?!

Apparently, what happens is your kidneys process both sodium chloride (common table salt) and lithium chloride (not to be confused with table salt. Doesn’t taste nice on your chips… apparently) in the same way. Ie, if you’re dehydrated or don’t have enough salt in your system your kidneys will hold onto what it has got, and invariably that will mean holding on to the lithium too. Your body doesn’t flush these things away in your urine like it normally would and you end up building up a little store. One thing is relatively harmless although again, wouldn’t recommend you put it on your chips after extraction from said kidneys, while the other thing starts to build up to toxic levels. You notice it most when you get the shakes, numb bits of your body, your concentration goes, etc etc. (there’s a much better explanation here: http://bipolarworld.net/Phelps/ph_2005/ph1350.htm).

You’re supposed to speak to your GP before you go on a diet of any kind when taking lithium but this is where things fell down for me. Neither myself, nor the GP or nurse put two and two together and that’s how I’ve ended up with lips like Mick Jagger and no feeling down my right side. Ok, I exaggerate, but I wouldn’t be me if I didn’t.

For those of you in the same position as me (not walking around like one of the undead, just considering dieting is what I mean by that) you might like to read the following guidelines from the National Institutes of Health Clinical Center:


These diet guidelines will help you keep your lithium blood level stable:

• Drink 8 to 10 glasses of water or other liquids every day.
Drinking plenty of fluids is important while you are taking lithium. Not drinking enough liquids may cause lithium levels to rise. You may need even more liquids during hot weather and during exercise when you sweat heavily. To avoid weight gain, select water and other non-caloric beverages.

• Keep your salt intake about the same.
Do not begin a low salt diet without first talking with your doctor or pharmacist. Do not suddenly increase the salt in your diet either. Less salt may cause your lithium level to rise. More salt may cause your lithium level to fall.
Try to keep your intake of these salty foods about the same from day to day: luncheon meats, ham, sausage; canned or processed meats and fish; packaged mixes; most frozen entrees and meals; soups and broths; processed cheeses like American; salted snack foods; soy sauce; smoked foods; olives, pickles; tomato juice; most fast foods; salt, salt containing seasonings and condiments like ketchup and meat sauces.

• Keep your caffeine intake about the same.
Keep amounts of coffee, tea, cola, and other soft drinks with caffeine about the same from day to day. Less caffeine can cause your lithium level to increase; more caffeine can cause your lithium level to decrease.

• Avoid alcoholic beverages.
Check with your doctor or pharmacist about this issue and any questions you have.

• Take lithium with food or milk.
This will reduce possible digestive side effects like nausea, vomiting, diarrhea, and abdominal pain.

Saturday 23 August 2014

28. From One Extreme to Another

This week I’m a lot more up and down than I expected to be. This is obviously not one of those periods of remission that I’ve read about! In this week’s blog I’m going to talk to you about some upsetting things so be warned. If you’re not feeling up to it, skip this blog and either come back to it another time or just pretend it never existed. I won’t be offended.

Last Friday I worked from home (that’s not the upsetting bit. Hold your horses!) and as I’ve explained to you previously, I don’t do well with being on my own for long periods. Even half an hour can be a bit of a stretch if I’m in one of those moods. Anyway, I noticed that as the day went on my thoughts became more and more dark and irrational. At the time they didn’t seem irrational, they seemed like valid worries that might affect the rest of my life, but looking back on them now, I can see that if I’d been able to anchor them just a little bit more in reality it’s possible I might not have got in such a state.

What I mean is, I was thinking about my marriage. Often when I’m down everything that I don’t have in life, everything I want but can’t reach and every reason for not being able to progress with my life falls to restrictions caused by my marriage. I don’t know why this is particularly or even whether there is any validity in it at all, but that’s how I feel when I’m down.

For example, I want to earn a bit more so we can go on holiday and travel. My hubby wants to give up work and start a business which I know we’ll struggle with. It will be stressful and there will be no money for years, if ever. We very rarely want the same things in life. So I think about what life would be like if we weren’t together. I think about moving out. How would I cope? I’d be exhausted, life wouldn’t be good, but then life’s not good now. The more I think about it the more depressed I become. So what’s the alternative? And that’s usually when I think to myself that there is no alternative and I may as well end it all now. You see. Not a very rational argument seeing as lots of people have split or got divorced and they manage somehow. But this is the thinking of someone for whom logic isn’t high on the agenda right now.

You know what scares me most about a suicide attempt? The thought of surviving.

I don’t want to have to go through years more counselling, justifying to everyone why life was just too tiring and altogether too much in that moment and probably always will be. I don’t want to have to explain to anyone I love why they weren’t enough to keep me here when in reality nothing could keep me here. For some of us suicide is an option only in as far as when it will happen, not if it will happen. And I think that’s because for some of us the disorder we carry around in our heads is priming us to self-destruct.

I don’t mean all this to be doom and gloom. It’s hard to discuss this subject without upsetting someone in some way. I‘m just telling you how I see things for me. You may agree, you may not.

Then yesterday I was listening to a lesson run by a life coach. She was very inspiring and I always feel uplifted after such talks. But she said something which made me think about my stance on suicide. She was talking about people’s pasts, saying that your past should not hold you back or stop you from trying again and making a success of things in the future. She then said that you have to align your frequency to the plan the universe has set out for you. Now this bit does sound a bit Star Trek but nevertheless her point was valid.

She continued to say that each of us is made happier when we align our actions with our desires, ie, if you want to become a vet, you don’t go to accountancy classes. If you do you’ll be miserable because you’ll be ignoring your inner desire and never allow yourself to work towards that goal. However, if you make the decision to follow the path that has been set out for you, ie, enhance your own abilities in areas you are naturally drawn towards, it will lead to you contributing something worthwhile to the world. If you align your frequency to the path the universe has assigned you, you will be happier.

Then she said that in essence everything is dictated by the universe. None of us would be here if the universe hadn’t allowed it, if life hadn’t been breathed into you. I know this is all a little hairy-fairy but it made me think that perhaps suicide is not my decision to make after all. I’ve been given this life by something else out there. For some that might be god, for others the universe. I have always assumed it is my life force to take and do with as I please, but she made me wonder whether I really have a right to fling it back at the universe when I’m done with it?

I know from my own experiences and how debilitating depression can be that there are those people out there who really can’t hold on any longer. For whom life is just too painful. I also know from a lot of years’ experience that if you hold on for just a bit longer you can often find something worth holding on for. My psychiatrist told me once that these desperate thoughts and feelings are a symptom of bipolar disorder and I will always get better if I give it time. As a symptom of an illness it’s pretty extreme, but he’s right. You get a cold, you’re going to experience the symptoms, that doesn’t mean the cold has to define your actual thoughts and feelings about life. If you’re going through a similar state to the one I’ve described then have faith that in another day or two you will have come through the worst of it.

This is one of those subjects I didn’t really know whether to broach in a blog. I certainly don’t want anyone thinking I advocate the idea, despite me saying I don’t judge those who must be in so much pain they feel they have no choice in the matter. However, it is a subject that, as bipolar sufferers, I suspect we’ve all faced in the past and possibly will do again. I hope that knowing there is someone out there who knows what you’re going through will help at least, and I’d like you to know that having you guys to share with helps me too.

http://www.nytimes.com/2014/04/14/us/suicide-prevention-sheds-a-longstanding-taboo-talking-about-attempts.html?smid=fb-nytimes&WT.z_sma=US_SPS_20140414&bicmp=AD&bicmlukp=WT.mc_id&bicmst=1388552400000&bicmet=1420088400000&_r=3

Saturday 16 August 2014

27. Darth And The Deathstar

Last week I talked about needing attention to feel loved and this week I was reminded why, in the world of adults, this is just not something any of us can expect. Firstly, I tried an experiment on Facebook. Each night that I rode home on the train I posted that I was feeling lonely. I wanted to see how many people would respond and to what extent. A bit of a mean experiment, I realise, but I thought that describing myself as lonely was an emotion that implied I was down but not so down that people should worry. On the first day I got no response. I left it a day and then posted the same thing again. Nowt! Not even my sister asked if I was ok. On the third attempt someone ‘liked’ my status! Then I threw a Facebook hissy fit and declared that despite posting three times that I was feeling lonely, I’d had no response and that they were all bastards. I was off to Twitter, I announced. And suddenly there was an outpouring. But not of sympathy or care, mostly a steady stream of sarcasm followed friendly insults. I think I was told to ‘suck it up, Princess’ as well as getting a few ‘What’s up with you?’ comments.

I hoped that perhaps this was a one off but I witnessed the same thing this week in work. My colleague Sandra came back from a few days off sick. She’d had a chest infection and was still struggling with it to the point she was wheezing heavily all the time. At one point in the day she got up to talk to our boss and could only walk very slowly. He watched her coming before commenting ‘Cor, blimey, you couldn’t sneak up on someone, could you? It sounds like Darth Vader’s coming to get me! Are you my father?’ The resulting laughter left her in a worse state and she spent the entire conversation whispering between wheezes. At the end of their short meeting he pointed to her desk and said ‘Off you go. Back to the Deathstar!’ So it would appear I’m not the only one who isn’t getting any sympathy in this world. And I can breathe, so bonus!

Saturday 9 August 2014

26. It's ALL about ME!

I’ve been feeling sorry for myself the last few days, I can tell you. It’s partly to do with this story I’m writing and all the stuff it’s kicking up from my past and partly because I’m still feeling very shaky about things in my personal life and relationship. I’m one of those people who is always looking for the next thing that will make me happy. And that next thing never turns out to be enough. I blame my childhood.

In fact, the more I look back at my past the more I realise just how often I was having episodes which could be attributed to bipolar (although mild, I think they were definitely there, and my husband agrees). I wonder now whether I always had it. This is a big deal for me. I was only diagnosed in my thirties and was happier thinking that it was brought on by my nervous breakdown than I was thinking that I was always a bit defective.

I was a very sensitive child. I could over-empathise to the point of driving myself into a worse state that the person I was empathising with. The thought of global warming turned me into a nervous wreck from the age of 8 onward. I even had suicidal thoughts then. What was the point of carrying on, it seemed, if we were all going to drown, freeze to death or perish under a fireball from the sun?

I had terrible OCDs. I couldn’t fill an ice cube tray with water and put it in the freezer if I’d been thinking about anyone I loved because it would mean their essence would be frozen and they’d be in pain because of me! I was terrified throughout most of my childhood of all the man-made issues in the world, not to mention the issues of abandonment I was dealing with when my parents divorced, the loss of people and things that meant a lot to me, a lack of love from my mother, no guidance of any kind from adults in my life and an inability to talk about my problems when there was no one there to listen anyway. Is it any wonder I turned into a little bag of nuts?

http://www.inforum.com/event/article/id/430212/group/Life/ - Half of all lifetime cases of mental illness begin by 14.

My husband says that my need to be adored and desire to be the centre of attention is due to the bipolar but I’m not so sure. I don’t want to be the centre of attention. Not in the way you’re thinking. Yes, I want to be successful and happy, but in an understated way. I want my talent and what I can do to be recognised.

I think all that stems from being a little girl with no one to give her what she needed. I’ve spent my entire adult life, and continue to spend it, fixing the problems that that life installed in me. I think what he actually means is, it’s very easy to fall into the trap of becoming a little self-absorbed when every day you have to be very aware of your own feelings, thoughts, rationale, and logic in order to assess how well you are.

This is why, when I see others suffering, I feel bad that I am this self-absorbed person, always asking that my needs be met no matter how illogical or outlandish they might be at times. I came into work this morning and my colleague is in a bad way. He seems very stressed and exhausted. Because he’s a work colleague I don’t know him well enough to probe so in a roundabout way of cheering him up I asked him to help me with the new software licensing acronyms that we’re going to add to our asset management system. I’m pleased to announce that we came up with the following, and a job well done I might add:

Ass.LicK - Assigned License Keys

U.Ass.LicK – Unassigned License Keys

SNot.LicK – Secure Notes License Keys